Also functions as list of band names. Via volume1
Today they did an injection on my left sacroiliac joint. This means, not counting surgeries, I’ve had four into my hip (that is a reeealllly long needle and you have to watch it because you lie on your back and the monitor is above you), 3 into my knee, two into my shoulder (those are both nothing really), one in my ankle, one in my wrist, 4 into my spine (kind of gnarly), and … 30 or so into pressure points? Things basically were better until all of the ankle stuff, it sent things back into spasm, plus I slacked off on the neurontin since I was barely required to move for six months, but now hopefully I will have “managed pain” and a “fairly normal life” until the next flareup, don’t get nerve damage.
I can’t move my leg and I have to wear my brace and my neurologist is unbearably cheerful.
We’re actually the first generation that is more likely to die before our parents due to depression and suicide.
How glad r u that ur a fkin 90’s kid now
I am slightly worried about getting a tattoo over the scar and over a steel plate? But as someone just pointed out, it’s clear I can tolerate a lot of pain.
"Every morning I sit at the kitchen table over a tall glass of water swallowing pills. (So my hands…"
About how publicity (in the Habermasian sense, for nerds) affects illness. It’s true that when my issues lacked a name/lacked a clear diagnosis it was very frustrating because people want to know what you have so they know how to act. And obviously you want to know what you have. The author seems to think having a highly Googled disease gives you an empathy advantage—that the woman in line and the waiter would have acted differently if they knew what dystonia was—I’m not sure if that is true. It smells a bit like an “awareness campaign” to me. But I do know that telling your story is always important.
I threw out my back and while this might be a great opportunity to reflect on all of the different kinds of physical pain I have had in the last few years—damaged nerves, partial paralysis, appendicitis, neuromas, shattered ankle, muscle spasms, migraines, arthritis, MPS, rotator cuff inflammation, really I just want to die.